EHLERS DANLOS SYNDROME

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MY INVISIBLE ILNESS

Diagnosed with Hypermobile Ehlers Danlos Syndrome (hEDS) at age 11 and Postural Orthostatic Tachycardia Syndrome (POTS) at age 26, Camille has grown up battling chronic pain and invisible illness. Camille advocates for people to be mindful of invisible conditions like hers. "People think you're a unicorn when you win Miss America, and they don't think you have anything wrong with you, but that's so untrue," she said. "And that's the whole issue with EDS— people like me look like I'm 100% fine, but then have all these other things that I deal with." {Forbes}

HOW YOU CAN SUPPORT EDS RESEARCH

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THE NORRIS LAB @ MEDICAL UNIVERSITY OF SOUTH CAROLINA

The Norris Lab specializes in Hypermobile EDS (hEDS) research and recently identified a very strong candidate gene for hEDS. To donate directly to this lab, click donate and select "EDS research in Regenerative Medicine"

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THE EHLERS DANLOS SOCIETY

Donations to The Ehlers-Danlos Society are critical to our continued ability to raise awareness and visibility of EDS and HSD among the general public.